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picu patient

Coby

1 May 2019, 12:44 p.m.
Patient Stories

Meet Coby; a brave young patient being treated on PICU, whose family are staying with us at Paul’s House.

After going into labour seven weeks early, Mum Billie was air lifted to Oxford Hospital to give birth to Coby. He was born was Gastroschisis; a birth defect which meant his intestines were outside of his body. Within hours, Coby was operated on to fit a stoma bag, which temporarily carried out the job of his bowels, before being transferred to St Michael’s Hospital Neonatal Intensive Care Unit for the specialist care he needed.

Unfortunately during this already agonising time, at just two weeks old Coby caught E.coli Meningitis on the brain, Sepsis and suffered from liver failure. He required urgent treatment and was transferred from St Michael's to the Paediatric Intensive Care Unit at Bristol Children’s Hospital, where he has been for the last four weeks.

In spite of his difficult start to life, Coby is now making good progress and has gone from feeding through a nasal tube to a bottle. He has also been fitted with a line that provides all of the nutrients he needs, and is on daily medication via a hickman line.

picu patient

The future for Coby’s family is uncertain as his condition changes week on week. During this incredibly tough time, Billie and her partner have had to spend months, hundreds of miles away from their home in Cornwall.

Fortunately, they were able to stay at Cots for Tots House during Coby’s time at St Michael’s NICU and then moved to Paul’s House to be closer to him on PICU. This means that they can be at his bedside within minutes.

Coby has a long road to recovery ahead, but with help from the expert staff on PICU, Billie and her partner will be trained up to give him the ongoing care he needs when they eventually return home. Until then, they have a place to stay at Paul’s House for as long as they need.

“Thank you for giving me and my family a place to stay at our time of need. Living so far away in Cornwall, it has meant so much to us to be able to stay so close to Coby.”

Billie

Coby's Mum

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